| Useful sites for professionals/patients/public: | ||
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Life Lessons |
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| The only national organisation
in England, Wales and Northern Ireland dedicated to the support of people
with Motor Neurone Disease (MND)and those who care for them www.mndassociation.org |
NHS Direct This is the online version of the NHS Direct telephone service. www.nhsdirect.nhs.uk |
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| Cancer Relief Macmillan Fund www.macmillan.org.uk |
Cancer Aid and Listening Line
(CALL) www.canceraid.co.uk |
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| The UK's leading cancer information
service with downloadable factsheets |
Network of national and regional
organisations concerned with the healthcare interests of patients, families and carers www.thepatientsforum.org.uk |
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| Manchester Cancer Information
and Support website |
Caring about carers: A National Strategy www.doh.gov.uk/carers.htm |
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| The Greater Manchester Strategic
Health Authority oversees both hospital and primary care services in Bolton,
Bury, Manchester, Salford, Oldham, Rochdale, Stockport, Tameside, Trafford
and Wigan. |
Bolton Primary Care Trust - Information
on NHS Services in the Bolton area www.bolton.nhs.uk |
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| Stockport Health Community On
the Internet www.sas-tr.nwest.nhs.uk |
Information on your local
area NHS Services |
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The British Medical Journal |
The American Society of Law, Medicine and Ethics |
|
| The Department of Pain Management
and Palliative Care at Beth Israel Medical Center, New York www.stoppain.org |
Growth House is an International
gateway to resources for life-threatening illness and end of life care. www.growthhouse.org |
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| Centre for Citizen Participation www.brunel.ac.uk |
The NHS Cancer Plan is accessible
here www.doh.gov.uk |
|
| Independent charity - umbrella
representative body for hospice and palliative care services/organisations
in England, Wales and Northern Ireland includes publications pertaining
to ethical issues, clinical guidelines, research, quality, commissioning
and provision www.hospice-spc-council.org.uk |
Website of the European Association
for Palliative Care (with good links) http://www.eapcnet.org/ |
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| Book: "Too Ill To Talk?" User Involvement in Palliative Care by Neil Small & Penny Rhodes Outlines user involvement in palliative care and includes narratives from patients living and coping with cystic fibrosis, motor neuron disease and multiple sclerosis. |
Alzeheimer's Disease Society - UK care
and research charity for people with all forms of dementia and their carers |
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| List of voluntary agencies in Manchester
and the UK www.voluntarysectoronline |
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Links for patients and carers | |
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Fundraising links | |
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Education and research links | |
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Have your Say! |
